HLHS Information

After finding out that Wyatt had a severe form of Hypoplastic Left Heart Syndrome (HLHS) and Hydrops Fetalis, I didn't know where to go for additional information.  The doctor's said, "Don't get on the Internet, it will be worse."  I did anyway.  I found a lot of information but nothing about other families experiences. 

The purpose of this tab is to give families links to information on HLHS and Hydrops, as well as blog links to other families who have experienced HLHS or Hydrops. 

Article - http://www.chop.edu/service/cardiac-center/heart-conditions/hypoplastic-left-heart-syndrome-hlhs.html - Reviews in medical terms the symptoms, treatments, etc of HLHS.
Article - http://community.babycenter.com/post/a24852151/new_chop_press_release_on_hlhs - Discusses the medical break throughs on HLHS.
Article - http://www.newsweek.com/2005/10/02/the-smallest-patients.html - Newsweek article on HLHS from 2005.
Good site - http://www.wisegeek.com/what-is-hypoplastic-left-heart-syndrome.htm - Offer information on HLHS and HRHS (Hypoplastic Right Heart Sydrome)
Great site - http://www.hopeforhlhs.com/surgery.html - I referenced this site the night I found out Wyatt had HLHS, good information and it provides hope. 

Video Series - http://www.chop.edu/video/fhp-hlhs-video/hlhs-morgan-story.html - Doctor Jack Rychik and team discuss HLHS through a series of short videos.  Doctor Rychik was one of many doctors who worked on Wyatt.

Congential Heart Defect Site - http://1in100.org/

Other Blogs from families who have experienced HLHS or similiar heart issues:
Aidan, Baby of Mine
The Real Life of a Red Head
Cora's Story - Great blog, very informational
Sawyer's Heart